New Reports Address Barriers, Inequities, and Policy Options for Youth and Young Adults with Disabilities Aging out of Public Programs

The National Alliance to Advance Adolescent Health/Got Transition has released two new reports and three policy briefs on the significant challenges and inequities that youth and young adults with disabilities face when aging out of Medicaid, CHIP, SSI, and Title V Programs.

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New Funding to Support National Center for System of Services for Children and Youth with Special Health Care Needs

This press release describes a new 5-year cooperative agreement from the federal Maternal and Child Health Bureau (MCHB) to the American Academy of Pediatrics (AAP) to form a new national center for the system of services for children and youth with special health care needs.. See more →

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The National Alliance Receives New Funding to Address Barriers and Policy Options for YSHCN Aging out of Public Programs

This press release describes a new grant award from the Lucile Packard Foundation for Children’s Health (LPFCH) to address the cliff that low-income youth with special health care needs (YSHCN) face as they age into adulthood and lose their child eligibility status in 4 major public programs: Medicaid, Children’s Health Insurance Program (CHIP), Supplemental Security Income (SSI) Program, and Title V Programs for Children with Special Needs. See more →

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Emergency Preparedness Toolkit for Young Adults with Intellectual and Developmental Disabilities and their Primary Care Team

A toolkit with two tip sheets to assist primary care teams and their young adult patients with ID/DD to plan for disasters and emergencies. The toolkit was developed with an expert advisory group with members from the major primary care professional societies and disability advocates, and it is available in both English and Spanish.

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The Business Case for Pediatric-to-Adult Health Care Transition

These business case statements offer a call to action for payers – both Medicaid and commercial insurers – to pay for pediatric-to-adult health care transition (HCT) services. They provide background information about HCT and a description of how payers can cover HCT services. These resources, which were produced with funding support from the Lucile Packard Foundation for Children’s Health, can be shared with payers to encourage payment for these services. Click here for a Medicaid version, and click here for a commercial payer version.

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The National Alliance Receives New Funding to Incorporate Mental Health Transition into Maryland High Schools

This press release explains the new grant award from the Maryland Department of Health's Office for Genetics and People with Special Health Care Needs to improve the transition of students with mental health conditions served by school mental health programs using Got Transition’s Six Core Elements of Health Care Transition. See more

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Health care gap affects 20% of United States population: Transition from pediatric to adult health care

by Margaret McManus, Patience White, Annie Schmidt, Michael Barr, Carolyn Langer, Kevin Berger, Allysa Ware. Health Policy OPEN. 2020;1:100007.

This article offers a series of implementation, payment, and research options to accelerate the adoption of recommended transition processes in both pediatric and adult systems of care. See more →

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Call for Improvements to Federal Child and Adolescent Psychiatry Workforce Projection Methods

by Samhita Ilango, Annie Schmidt, Margaret McManus, Wun Jung Kim. Journal of the American Academy of Child & Adolescent Psychiatry. 2020;59(4):501-503.

This commentary calls for improving the national projections of the future child and adolescent psychiatry workforce to address the serious, growing, and unmet need for mental and behavioral health services among children, adolescents, and young adults (C/A/YA) in the United States. See more →

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Outcomes of Pediatric to Adult Health Care Transition Interventions: An Updated Systematic Review

by Annie Schmidt, Samhita Ilango, Margaret McManus, Katherine Rogers, Patience White. Journal of Pediatric Nursing. 2020;51:92-107.

This systematic review strengthens the evidence that a structured HCT process for youth with special health care needs can show improvements in adherence to care, disease-specific measures, quality of life, self-care skills, satisfaction with care, health care utilization, and HCT process of care. See more →

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Summary of Factors Influencing Adolescent Well-Care Performance in Top-Performing State Medicaid Programs

by Annie Schmidt and Margaret McManus, January 2020.

This report summarizes factors influencing adolescent well-care performance in six top-performing state Medicaid programs. State Medicaid officials from the states with the highest adolescent well-care visit performance – RI, CT, TX, NY, NH, and MA – were interviewed to understand the factors contributing to their success. See more →

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New Grant Award Provides Funding to Implement Transition Model in Washington, DC

The National Alliance to Advance Adolescent Health has received funding from the WITH Foundation to improve the transition for young adults with intellectual and developmental disabilities (IDD) from pediatric to adult health care. The National Alliance will partner with The HSC Health Care System in Washington, DC to implement this first-of-its-kind transition value-based payment model. See more →

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New Funding to Promote Value-Based Payment and Care Recommendations for Transition

The National Alliance to Advance Adolescent Health has received funding from the Lucile Packard Foundation for Children’s Health to develop a strategic dissemination plan to increase the use of value-based payment (VBP) and care delivery recommendations by payers for pediatric-to-adult health care transition. See more →

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